I was diagnosed with keratoconus at age 18. I began wearing rigid gas permeable (RGP) contacts in both eyes at that time. I had cornea transplant in left eye at age 21, and transplant in right eye 10 years later. I continued wearing RGP lenses in both eyes after transplants.
About 3 years ago, I started the tandem fit (piggy back) in the left eye, but maintained only the RGP for the right one. The left one became so uncomfortable that I would literally go without putting my left lenses in. I HATED it. A few months ago, it started popping out, so I saw my specialist. He suggested the scleral lens for the left eye.
I got my new scleral for left eye in September and I LOVE IT!! I've gone back twice since then and it's fitting and working like it's supposed to. I don't have to go back for another 6 months.
NOW, I'm doing tandem in the right eye. Some days I can go without the soft one, and some days, I have to put it in with the RGP. I'm sure I will be moving to a scleral lens for my right eye very soon. There is a huge difference in the comfort level with the scleral and the RGP.
Like any other keratoconus patient, my eyes are tired when I take my contacts out at end of day. Headaches are often, but they are mostly tolerable. My grafts are clear and there is no thinning. They are at full thickness.
Living with keratoconus is a headache (literally), at times, but it's definitely not the end of your life. There is so much more being done now for keratoconus, than when I was first diagnosed, so I am very hopeful.
Besides that, I walk by faith, not by sight... definitely not THIS sight.
Live a hopeful life with keratoconus. accept your diagnosis, treat it properly, and keep pushing forward.
Sheronda Watson